People who need people use social media

iCrossing has been analyzing "How America Searches" for financial services, travel, and other vertical market information over the past two years. Now, they've researched Americans' search for health and wellness information.
It will be no surprise to Health Populi readers that health search is a normal part of most Americans' online activities, based on previous research by the Pew Internet & American Life Project, California HealthCare Foundation, JupiterMedia, and other credible research teams.
This report from iCrossing breaks new ground by offering some hard numbers about consumers' use of social media in health.
Among the available social media types, consumers chose Wikipedia (chosen by 20% of online health searchers), online forums and message boards as the most favored in health and wellness. iCrossing found that these were particularly attractive to the youngest adult cohort of 18-to-34 year old health searchers. But note that the average age of the social media user for health is 37, compared with 44 years of age for the overall health search population.
The most compelling reason consumers are using social media in health is to "connect with other consumers to exchange information or get support," according to 75% of the online health searcher. The next most important reasons to use social media vs. other types of online sites is to find out more about the costs of a procedure or medical equipment (noted by 55%) and to access personal health records (noted by 56%).
The iCrossing survey was conducted in December 2007, so should be considered current as of the timing of the date of this blog post.
Health Populi's Hot Points: While there are more than a few skeptics in the market today dissing the "Health 2.0" concept (among them, those who also denigrate the "Web 2.0" moniker), the proof of the reality of social media in health is alive and well and healing on sites like DiabetesMine, PatientsLikeMe, Organized Wisdom, and WEGOHealth, among many others too numerous to mention. Increasing numbers of people are reaching out to others for more than the kind of support they might have found in the Compuserve health interest groups in the 1980s; they're finding practical solutions to chronic health challenges. Consumer-generated content in health is finding a receptive audience in this early adoption phase. There are already a cadre of influential health bloggers and social media mavens who are the Patient Opinion Leaders in their disease areas -- whether cancer, diabetes, MS, mental health, HIV, and a long list of other chronic conditions. Just as pharma companies recognize and reward Key Opinion Leaders (KOLs) for their knowledge of patients and prescriptions, the Consumer Opinion Leader (COL) will become influential for both other consumers and, increasingly, stakeholders like health plans and pharma companies.

7 Comments:
Jane, Excellent summary and analysis...thanks.
You write that: The most compelling reason consumers are using social media in health is to "connect with other consumers to exchange information or get support," according to 75% of the online health searcher.
Lumping together these two options -- 1) connecting with other consumers, with 2) exchanging information -- strikes me as missing a potentially critical point.
So, why DO people go the the web for health information. Do they want 1) SUPPORT, and/or 2) ANSWERS (information).
This should be two separate questions (for future studies).
My intuition is that a much larger portion of people just want answers, UNLESS they have a condition that is particularly amenable to social support, e.g., cancer, Parkinsons,.
By
Vince Kuraitis, At
January 16, 2008 10:21 AM
Vince, so glad you read this! What we're seeing in the pioneering excellent examples of chronic condition sites such as DiabetesMine and PatientsLikeMe is the duality of info AND support. In the case of info for PatientsLikeMe, the database on drug dosing, quality of life and outcomes throughout the MS cycle is probably richer than any other single source on the globe. I am forecasting that these sites--where a plethora of patients/caregivers participate--are becoming a next gen of patient advocacy beyond the traditional organizations. We'll still have our friends at the Associations, of course--but the stories of real patients sharing with each other are incredibly rich and collectively powerful...and potentially political. Thanks again! JSK
By
Jane Sarasohn-Kahn, At
January 16, 2008 2:06 PM
Jane:
Thanks for this one, it's a fascinating report and the first I've seen that does this kind of breakdown. I confess that I'm a Health 2.0 believer, so this may be just my confirmation bias at work :)
It's interesting to see that, among the tools that consumers are using, Facebook and all social networks combined look to be a little under "Drug Advertisements (banner, text, or rich media)."
Facebook, in particular, is very active right now with consumers sharing health experience and fund raising.
Amazing to think that DTC advertising still outweighs them.
Jude O'Reilley
Trusera: The Power of Been There
By
heyjudeseattle, At
January 16, 2008 2:08 PM
Excellent catch Jane!
By
Matthew, At
January 16, 2008 6:55 PM
First time reader. First time caller. Love your insights, analysis and perspective. Would love to make introductions. Thank you for what you do.
Matthew Zachary
12-Year Young Adult Survivor
Founder, Executive Director
I'm Too Young For This!
linkedin: http://linkedin.i2y.com
facebook: http://facebook.i2y.com
By
I'm Too Young For This! Cancer Foundation, Inc., At
January 17, 2008 5:18 PM
Not to surprised by these findings. One need only go to a site such as PatientsLikeMe to see why it works for those with debilitating illnesses. What remains to be seen is how these sites will scale as they look to provide other disease-related communities, such as what PatientsLikeMe has planned for mood disorders and how their revenue model will evolve.
For many with a chronic illness, such Web-based services as these will be crucial, but what I would really like to see (no sign yet) is a meddling of social media and PHR technology. Heard rumor such is under development but by and large, the majority of PHR vendors today are really missing the boat on this one.
Lastly, find the adoption of the Web2.0 moniker to create Health2.0 as just marketing shtick, nothing more and honestly debases what is really happening.
By
John, At
January 18, 2008 11:29 AM
Fantastic, and just another step towards using the web to place market forces on the healthcare industry in general. What I hope to see next is an authoritative, leading site on provider information -- a directory, broken up by local regions, in which consumers can provide feedback about their providers, post questions, even openly discuss rates.
Aaron Briggs
Fontis Health
Our Online HSA Support System
By
briggsa, At
January 18, 2008 2:45 PM
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