Most health consumers in the U.S. use the internet to seek health information, socialization and empowerment. Dig deeper, and you’ll find a growing cadre of people who go online to find people with the same conditions they have; 1 in 4 people (23%) among those living with chronic conditions have gone online to ID others like them, including people with high blood pressure, diabetes, heart disease, lung conditions, cancer, and other chronic health issues. The percentage of people looking for “people like me” drops to 15% of internet users with no chronic conditions seeking health-peers online.
However, peers-in-health aren’t always seen as the ideal source for health information. Some sources are seen better than others by people using the internet for health activities at different times. People turn to professional sources (e.g., doctors and nurses, et. al.) most often for medical diagnoses, information about prescription drugs and alternative treatments, and recommendations for doctors and hospitals.
On the other hand, people look more to “patients like me,” friends and family for emotional support in dealing with their health or a remedy for an everyday health issue.
Health professionals and patients/friends/family are virtually tied when it comes to health consumers seeking practical advice for coping with day-to-day health. As a respondent told the Pew Internet & American Life Project (PIP), “When time is of the essence, search on the internet is the only way to time travel.”
Digging deeper beyond people with chronic conditions, PIP and CHCF focused in on people with rare diseases through research conducted with NORD, the National Organization for Rare Disorders. Peer-to-peer health is particularly important and emergent among people diagnosed with conditions that few in their community have. In this scenario, the patient can feel and be isolated from mainstream community care. Thus, in ACOR‘s 2007 study, patients said that information exchange and not ‘just’ emotional support was the key driver in the ACOR community. The PIP report points out that communities such as CureTogether and PatientsLikeMe enable patients with rare conditions to make more informed treatment decisions.
Health Populi’s Hot Points: Welcome to the DIY health-information mash-up era of empowered patients. Engaged health citizens use a mix of sources for managing health: peers, professionals, family, friends, and the growing roster of communities, portals and tools online targeting health issues.
I often point to Jack Nicholson’s character, Colonel Nathan R. Jessep, in A Few Good Men, featured in the video above. Col. Jessep tells Tom Cruise’s Lt. Kaffee, “You can’t handle the truth.”
There is sufficient evidence gathered through the maturation of patient-centered social networks online that patients, indeed, can handle the truth. They want more than emotional support, although health citizens certainly want that: engaged patients want access to health expertise, to manage both the toughest acute diagnosis as well as everyday health, just-in-time, advice.