Most health consumers define the value of drugs in terms of safety and efficacy first, then quality of life and cost second. These priorities are similarly shared by both biopharma executives and managed care management.

Where consumers diverge with the two health industry stakeholders, though, is with respect to their power: while about 1 in 3 biopharma and managed care execs believe that patients will be influential in the success or failure of new therapies over the next five years, only 11% of patients say that “people like me” will be influential over what new drugs will be available in the next 5 years. And, 59% believe they won’t be very influential.

This intriguing finding comes from a survey from Quintiles, polling biopharmaceutical stakeholders including 144 biopharmaceutical executives, 129 managed care execs, and 1,048 U.S. adults age 18+, conducted in February-March 2010.

As for biopharma’s competence at communicating “value” directly-to-end users (consumers, patients, caregivers), the industry admits to missing the boat when it comes to engaging with consumers via social media, as shown in the chart. While half of biopharma execs believe they use the Old School methods of medical meetings and “the literature” effectively to communicate a drug’s value proposition, only 1 in 5 think they’re getting social media right. Direct-to-payer communication is also a weakness, in the eyes of biopharma pholk.

Health Populi’s Hot Points:  Communicating the value of a prescription or specialty drug is a sine qua non for bio/life science companies in this era of (1) consumer-directed health (broadly writ) and (2) comparative effectiveness.  Pharma and biotech companies must clearly state the case for at least two key audiences: first, the patient-consumer-caregiver, who must reach into a pocket to invest a significant co-pay or coinsurance; and second, the payor, who rules a therapy on or off of a formulary, and tiers it to ‘nudge’ users toward one vs. another based on efficacy, safety, quality of life factors, and yes, cost — which all add up to “value.”  

Bio and life science companies are surely behind in getting up close and personal with patients in social networks. Online social networks are already providing useful channels for engaged patients and health consumers to share their views on these therapies at places like PatientsLikeMe, Organized Wisdom, DiabetesMine, TuDiabetes, WEGOHealth, and other emerging networks bringing consumer-driven transparency to a once opaque pursuit. That is, the search for value in bio/pharmaceuticals. That search continues, and as patients see the light that transparency brings, they’ll figure out the power they have to leverage when it comes to demanding products that work, that are safe, that add life to years. That’s value spelled with a capital “V.”

3 Comments on Health consumers don’t understand their patient-power…yet

Civis Isus said : Guest Report 9 years ago

I'm with Nancy - in a way, in imagining that with respect to their end-of-life health, many Boomers will display characteristics in common with the protagonist of Somerset Maugham's 2nd rate short story, The Lotus Eater Thomas Wilson took "greater risk", too.....

Jane Sarasohn-Kahn said : administrator Report 11 years ago

Nancy - I absolutely concur with your assessment of risk and sicker people. Communicating more effectively about the nature of risk in health decision making will be key to informing and empowering health citizens as they/we take on more central roles in our own health, and the health of those we care for. Thanks for pointing this out. JSK

Nancy Hughes said : Guest Report 11 years ago

Interesting data about health consumers. But I would argue that "patients" may have a slightly different take on the value question. Based on national focus group research over several years, the National Health Council has witnessed that patients with chronic diseases and disabilities -- individuals who are dependent on the health care system for the rest of their lives after diagnosis -- are willing to take a greater risk with their treatment plan (including the medications) if it means a higher quality of life. It's all about the personal predicaments, rights, and preferences.

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