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A Health Consumer Bill of Rights: Assuring Affordability, Access, Autonomy, and Equity

Let’s put “health” back into the U.S. health care system. That’s the mantra coming out of this week’s annual Capitol Conference convened by the National Association of Benefits and Insurance Professionals (NABIP). (FYI you might know of NABIP by its former acronym, NAHU, the National Association of Health Underwriters).         NABIP, whose members represent professionals in the health insurance benefits industry, drafted and adopted a new American Healthcare Consumer Bill of Rights launched at the meeting. While the digital health stakeholder community is convening this week at VIVE in Los Angeles to share innovations in health tech, NABIP

 

A Digital Health Checkup for the US – #1 in AI, Meh in Interoperability – An OECD Update

While health care has been slower than other industries to leverage digital transformation, COVID-19 accelerated change — revealing some key barriers blocking the potential for more fulsome transformation, the OECD explains in its latest version of Health At A Glance for 2023 with a detailed chapter on “digital health at a glance.”                   The OECD report assesses digital health maturity across 22 countries: in addition to the U.S., the report provides details digital health traits in (alphabetically) Australia, Austria, Belgium, Canada, Czech Republic, Denmark, Estonia, Finland, France, Germany, Ireland, Israel, Japan, Korea,

 

Patients Don’t Trust Big Tech with Personal Health Information Much Preferring Healthcare Providers as Data Stewards

Nearly all patients are concerned about their medical records getting leaked or breached, which is The State of Patient Privacy, the title of a consumer study from Health Gorilla with a headline finding that “Patients don’t trust Big Tech with their health data.”             With trust the “backbone” of health information exchange, Health Gorilla calls out, we have to face a big challenge here as health care enters its own sort of industrial revolution embedded AI and data analytics across the health/care ecosystem. How to re-build trust with the very technology that can help health care,

 

Your Home as Clinical Lab: Withings Brings “Your Urine, Your Self” to #CES2023

We’ve all been morphing our homes into our personal HealthQuarters since the start of the coronavirus era. Millions of global health citizens have taken to telehealth who never used a health care “digital front door” before. Other patients adopted remote health monitoring to avoid perennial visits to doctors for managing chronic conditions like diabetes or heart disease. From the kitchen to the bedroom, our homes have become our health hubs. And now, to the bathroom and specifically, the toilet. Withings, maker of my personally favorite connected weight scale, announced U-Scan, a direct-to-consumer lab test platform that analyzes our urine from

 

When Household Economics Blur with Health, Technology and Trust – Health Populi’s 2023 TrendCast

By Jane Sarasohn-Kahn on 22 December 2022 in Anxiety, Behavioral health, Big data and health, Big Tech, Broadband, Business and health, Cardiovascular health, Chronic care, Chronic disease, Connected health, Consumer electronics, Consumer experience, Consumer-directed health, Coronavirus, COVID-19, Cybersecurity, Data analytics and health, Demographics and health, Depression, Design and health, Determinants of health, Diet and health, Digital health, Employee benefits, Employers, Financial health, Financial wellness, Fitness, Food and health, Grocery stores, Health apps, Health at home, Health benefits, Health care industry, Health citizenship, Health Consumers, Health costs, Health disparities, Health Economics, Health ecosystem, Health engagement, Health equity, Health insurance, Health Plans, Health policy, Health politics, Health privacy, Healthcare DIY, Heart disease, Heart health, HIPAA, Home care, Home economics, Home health, Hospitals, Infectious disease, Love and health, Medication adherence, Meditation, Mental health, Mindfulness, Moms and health, Money and health, Out of pocket costs, Patient experience, Personal health finance, Pharmaceutical, Pharmacy, Physicians, Popular culture and health, Prescription drugs, Prevention and wellness, Primary care, Public health, Race and health, Remote health monitoring, Retail health, Risk management, SDoH, Self-care, Shopping and health, Social determinants of health, Specialty drugs, Stress, Telehealth, Telemedicine, Transparency, Trust, User experience UX, Vaccines, Value based health, Virtual health, Vitamins, Wearable tech, Wellbeing, Workplace benefits

People are sick of being sick, the New York Times tells us. “Which virus is it?” the title of the article updating the winter 2022-23 sick-season asked. Entering 2023, U.S. health citizens face physical, financial, and mental health challenges of a syndemic, inflation, and stress – all of which will shape peoples’ demand side for health care and digital technology, and a supply side of providers challenged by tech-enabled organizations with design and data chops. Start with pandemic ennui The universal state of well-being among us mere humans is pandemic ennui: call it languishing (as opposed to flourishing), burnout, or

 

Wearable Tech for Health Tracking, Online Dating and Banking: Exploring the “Fluidity” of Peoples’ Data Privacy Views

“The security of online data is the top consideration for consumers across many forms of online activities including email, search, social media, banking, shopping and dating”….and using health apps. A new poll from Morning Consult, explained on their website, explains that For Consumers, Data Privacy Has a Fluid Definition.               Those privacy nuances and concerns vary by activity, shown in the first chart here from the study. For online banking, the most important consideration among most consumers (55%) is the privacy and security of their online data. Privacy and security of personal data was

 

The Reluctance of Consumers to Share Personal Information – The Challenge of Data for Health “Blurring”

Health is the cornerstone to our core needs, thereby the cornerstone to trust.” This was one lens on the latest 2022 Edelman Trust Barometer published earlier this month. But trust is in short supply when it comes to consumers openness to share their personal information we learn through a new study published in JAMA, Consumer Willingness to Share Personal Digital Information for Health-Related Uses. For some historical context, the authors (all affiliated with the University of Pennsylvania [medical school or Wharton (business school)] start with HIPAA, the Health Insurance Portability and Accountability Act which served up privacy protections based on

 

The Pandemic Accelerated Consumers’ Digital Health Tech Ownership As Big Tech Morphs To Big Health

The pandemic ushered in millions of peoples’ first digital health experiences, many of which will persist according to the 23rd Annual U.S. Consumer Technology Ownership & Market Potential Study, published by the Consumer Technology Association. CTA conducted an online survey among 2,409 U.S. adult 18 and over in April 2021 to gather data for this annual report. To ensure a fair sample, CTA drew three datasets for the general population along with an Hispanic oversample and an oversample for people 65 years of age and older. The study looked at 83 consumer technology products and sub-categories, including many directly related

 

Managing the Risks of Fast-Growing Digital Health

Investments in the digital health sector have fast-grown in the past decade, reaching $14bn in 2020 based on Rock Health’s latest read on the market. The COVID-19 pandemic accelerated the field across many industry segments. With such turbocharged growth on the supply side, Beazley, experts in specialty insurance, explores the risks of digital health and wellness in a new report, Digital health, telehealth and wellness: Attitudes to risk and insurance. With great potential for both innovation and reward comes great risks: Beazley points to the facts that, over two-thirds of digital health companies lack insurance coverage for medical malpractice for

 

The Cost of Healthcare Can Drive Medical Rationing and Crowd Out Other Household Spending

One in five people in the U.S. cannot afford to pay for quality health care — an especially acute challenge for Black and Hispanic Americans, according to a West Health-Gallup poll conducted in March 2021, a year into the COVID-19 pandemic. “The cost of healthcare and its potential ramifications continues to serve as a burdensome part of day-to-day life for millions of Americans,” the study summary observed. Furthermore, “These realities can spill over into other health issues, such as delays in diagnoses of new cancer and associated treatments that are due to forgoing needed care,” the researchers expected. The first table

 

A New Health Literacy Pillar: Personal Data Stewardship

The growing use of APIs in health information technology innovation for patient care has been a boon to speeding development placed in the hands of providers and patients. Using APIs can help drive interoperability and make data “liquid” and useable. APIs can enable “Data liberación,” a concept proposed by Todd Park when he worked in the Obama administration. Without securing patients’ personal health data leveraging APIs, those intimate details are highly hackable explained in All That we Let In, a report from Knight Ink and Appr0ov. It is likely that behind growing health data hacks is the marginally greater financial

 

Ensuring That Humanity Retains Control of Connected Things: A Message from Microsoft at CES 2021

Artificial intelligence (AI) has begun to play a role in health care for predictive analytics, personalization, and public health. On 26th January, I’ll moderate a tweetchat at 1 pm Eastern time, brainstorming the current and future state of and opportunities for AI in health care. I’ll be co-chatting with Microsoft’s AI leader, Tom Lawry (@TCLawry on Twitter). In advance of that discussion, I wanted to feature remarks shared by Brad Smith, Microsoft President, that I recently heard at CES 2021, the annual (this year, virtual) meeting convening the largest community of consumer electronics stakeholders globally Smith wove a crucial, impactful

 

Our Homes Are Health Delivery Platforms – The New Home Health/Care at CES 2021

By Jane Sarasohn-Kahn on 18 January 2021 in Aging, Aging and Technology, Baby health, Big data and health, Bio/life sciences, Bioethics, Boomers, Broadband, Business and health, Connected health, Consumer electronics, Consumer experience, Consumer-directed health, Coronavirus, COVID-19, Data analytics and health, Demographics and health, Dental care, Design and health, Diagnostics, Digital health, Digital therapeutics, Electronic medical records, Exercise, Fitness, Food and health, GDPR, Grocery stores, Guns and health, Health and Beauty, Health at home, Health care marketing, Health citizenship, Health Consumers, Health costs, Health disparities, Health Economics, Health ecosystem, Health engagement, Health equity, Health marketing, Health media, Health Plans, Health policy, Health politics, Health privacy, Health regulation, Healthcare access, Healthcare DIY, Heart disease, Heart health, HIPAA, Home care, Hospitals, Housing and health, Internet and Health, Internet of things, Medical device, Medical innovation, Nutrition, Obesity, Oral care, Patient engagement, Patient experience, Pharmacy, Physicians, Popular culture and health, Prevention and wellness, Primary care, Privacy and security, Public health, Remote health monitoring, Retail health, Robots and health, Safety net and health, SDoH, Self-care, Sensors and health, Sleep, Smartwatches, Social determinants of health, Social responsibility, Sustainability, Telehealth, Telemedicine, Transparency, Trust, Virtual health, Wearable tech, Wearables, Wellbeing

The coronavirus pandemic disrupted and re-shaped the annual CES across so many respects — the meeting of thousands making up the global consumer tech community “met” virtually, both keynote and education sessions were pre-recorded, and the lovely serendipity of learning and meeting new concepts and contacts wasn’t so straightforward. But for those of us working with and innovating solutions for health and health care, #CES2021 was baked with health goodness, in and beyond “digital health” categories. In my consumer-facing health care work, I’ve adopted the mantra that our homes are our health hubs. Reflecting on my many conversations during CES

 

Trust Plummets Around the World: The 2021 Edelman Trust Barometer in #CES2021 and Microsoft Context

Citizens around the world unite around the concept that Trust is Dead. This is no truer than in the U.S., where trust in every type of organization and expert has plummeted in the wake of the COVID-19 pandemic, political and social strife, and an economic downturn. Welcome to the sobering 2021 Edelman Trust Barometer, released this week as the world’s technology innovators and analysts are convening at CES 2021, and the annual JP Morgan Healthcare meetup virtually convened. As the World Economic Forum succinctly put the situation, “2020 was the year of two equally destructive viruses: the pandemic and the

 

The Digital Consumer, Increasingly Connected to Health Devices; Parks Associates Kicking Off #CES2021

In 2020, the COVID-19 pandemic drove U.S. consumers to increase spending on electronics, notably laptops, smartphones, and desktop computers. But the coronavirus era also saw broadband households spending more on connecting health devices, with 42% of U.S. consumers owning digital health tech compared with 33% in 2015, according to research discussed in Supporting Today’s Connected Consumer from Parks Associates. developed for Sutherland, the digital transformation company. Consumer electronics purchase growth was, “likely driven by new social distancing guidelines brought on by COVID-19, which requires many individuals to work and attend school from home. Among the 26% of US broadband households

 

How COVID-19 Mobilized Participatory Health and the Importance of “Correct” Personal Health Records

explained in a new report from EY co-sponsored by the American Hospital Association (AHA) and the AHA Center for Health Innovation. Digital Transformation – Anywhere Care envisions “health care with no address, or bringing care to the consumer or patient rather than expecting the patient to go to the hospital” as a “vital sign” of health care’s changes going into the new year of 2021. COVID-19 accelerated a movement in which I’ve been involved for over a decade, known as “participatory health.” In its early phase in the U.S., Dr. Tom Ferguson identified the emerging role of the internet in

 

Health Consumers Keen to Share and Download Data, But Privacy Remains a Concern

People in the U.S. are growing their health IT muscles and literacy, accelerated in the coronavirus pandemic. In particular, health consumers in America want more access to their personal health data, a study from the Pew Research Center has found in Americans Want Federal Government to Make Sharing Electronic Health Data Easier. Pew collaborated with Public Opinion Strategies and Hart Research to conduct a survey in June and July 2020 among 1,213 U.S. adults 18 and over to determine peoples’ perspectives on personal health information in light of their pandemic era experiences. This study re-confirms the current state of the health

 

Data Well-Being: A Pillar of Health Citizenship for US Consumers

In the COVID-19 era, most U.S. consumers believe they have an obligation to share personal health information to stop the spread of the coronavirus. However, only 44% would be willing to share their personal data with a national database, a MITRE study learned. Only one-third of Americans would be willing to share their temperature, 29% their location, and one-fourth information about their chronic conditions. The Harris Poll conducted the study among 2,065 U.S. adults 18 and over in mid-June 2020 to gauge peoples’ perspectives on health data and privacy. Three-quarters of people in the U.S. believe that data privacy “is a

 

Most Americans Are Curious and Hopeful About Genetics Research, But Privacy-Concerned

Most Americans associate more optimistic words with human genetics research than they do darker implications: “curious,” “hopeful,” “amazed.” and indeed “optimistic” ranked the top four impressions in peoples’ minds, based on a survey form the American Society of Human Genetics (ASHG). Below these perceptions are a few concerning concepts such as “cautious,” “concerned,” “hesitant, and “skeptical,” the poll found. Based on the relatively positive views on genetics research, most Americans support increasing Federal funding for that research: 74% said it was somewhat or very important to do so, compared with 15% saying it was not important. People value genetics research

 

The Pace of Tech-Adoption Grows Among Older Americans, AARP Finds – But Privacy Concerns May Limit Adoption

One in two people over 50 bought a piece of digital technology in the past year. Three in four people over fifty in America now have a smartphone. One-half of 50+ Americans use a tablet, and 17% own wearable tech. The same percentage of people over 50 own a voice assistant, a market penetration rate which more than doubled between 2017 and 2019, AARP noted in the 2020 Tech and the 50+ Survey published in December 2019. For this research, AARP worked with Ipsos to survey (online) 2,607 people ages 50 and over in June and July 2019. Across all

 

Trust Is the Currency for Consumer Health Engagement – A Bottom-Line at CES 2020

There’s less talk about Bitcoin and cryptocurrency at #CES2020. The most important currency under discussion is Trust. We have begun a consumer electronics migration from the past decade of the Internet of Things to this next decade of the Intelligence of Things. The different “I’s” signal the transition from devices that have connected to the Internet and generated data from our everyday lives, to the next ten years of gathering that data, mashing it up for meaning, and feeding back intelligence to users in the form of advising, coaching, nudging — with potentially powerful feedback loops for health, wellness and

 

Most Consumers Are Interested in Using a Voice Assistant for Some Type of Health Care

While 75 million people in the U.S. have a smart speaker at home, only 1 in 13 Americans have used a voice assistant like Alexa or Google Assistant for health care. But over one-half of consumers would like to access a voice assistant for some aspect of their health care, according to a study from Orbita and Voicebot, Voice Assistant Consumer Adoption in Healthcare. The study polled 1,004 U.S. adults 18 and over in September 2019. In 2019, few health care providers have adopted voice assistants into their workflows. The report calls out one big barrier to early adoption especially

 

Prelude to Health 2.0 2019: Thinking Consumers At the Center of Digital Health Transformation

“Digital transformation” is the corporate strategy flavor of the moment across industries, and the health are sector isn’t immune from the trend. As this 13th year of the annual Health 2.0 Conference kicks off this week, I’m focused on finding digital health innovations that engage people — consumers, caregivers, patients, health citizens all. This year’s conference will convene thought leaders across a range of themes, and as is the Health 2.0 modus operandi, live demo’s of new-new things. As Health 2.0 kicks off today in pre-conference sessions, there is useful context described in a new report from the American Hospital

 

Health Consumers Expect Healthcare to be Digital (and Secure), Philips Future Health Index Finds

Health care system financing, delivery, and workflows widely vary across nations around the world. Philips surveyed health care professionals and consumers living in 15 countries, from North America to Asia, and found that these health systems share one over-arching objective: to provide quality care with improved experiences for both patients and healthcare professionals. Being Philips, what underpins that quality and experience is technology; Philips explored telehealth, AI, digital health records (DHRs), and other digital health tools that can engage patients. Philips published results from this global study in The Future Health Index 2019, themed “Transforming healthcare experiences, exploring the impact

 

Americans Most-Trust Health Care Providers With Their Data – But Are They Right To Do So?

Americans least-trust social media companies, Internet search engines, and the Federal government to keep their personal information secure. Americans most-trust their doctors, their banks, and their hospitals to protect their personal information. Are people clear-headed about this perception? I pose, prompted by this month’s survey from POLITICO and the Harvard Chan School of Public Health on data privacy and e-cigarettes. The first table shows that major finding, with a view on the consumer’s political party identification. There are interesting results revealed by party ID: More Democrats trust doctors, hospitals, health plans, and credit card companies with their personal data. More

 

Privacy and the New Health Ciitizen

Data security breaches, access challenges, and privacy leakages plague the current state of Americans’ personal health information (PHI). HIPAA, the Health Insurance Portability and Accountability Act that was legislated in 1996, isn’t sufficiently robust to deal with the nature of this health information 23 years after that law was first implemented. That’s not a typo in the title: Ciitizen (spelled with two “i’s”) launched a The Patient Record Scorecard on 14th August. The Scorecard was developed to gauge the progress (and lack thereof) of patient information access afforded by peoples’ health care providers. What did Ciitizen learn from this process?

 

From Health Consumers to Health Citizens – a U.S. Patient Rights Moonshot?

Issue No. 4 of StartUp Health Magazine is dedicated to 8 Health Moonshot Principles. StartUp Health sees these moonshots taken together as, “a blueprint for achieving the impossible.” There’s an aspect of U.S. health care that currently feels impossible to achieve, and that’s consensus on what would constitute a sound approach to covering all Americans for health care as a civil right and whether the nation can “afford” doing so. On pages 22-23 of the digital magazine, you’ll find my essay, “From Health Consumers to Health Citizens.” This write-up summarizes the plotline of my book titled HealthConsuming, which features that

 

A Matter of Trust, Perception, Risk, and Uncertainty – The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions

By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust           A Matter of Trust, by Billy Joel If you’re in health care and don’t live under a rock, you have probably heard that United Health Group (UHG) has acquired PatientsLikeMe (PLM).  After the announcement, there was a lot of sound and fury, some of which signified nothing, as the saying goes, and some which signified a lot.

 

Will Health Consumers Morph Into Health Citizens? HealthConsuming Explains, Part 5

The last chapter (8) of HealthConsuming considers whether Americans can become “health citizens.” “Citizens” in this sense goes back to the Ancient Greeks: I return to Hippocrates, whose name is, of course, the root of The Hippocratic Oath that physicians take. Greece was the birthplace of Democracy with a capital “D.” Hippocrates’ book The Corpus is thought to be one of the first medical textbooks. The text covered social, physical, and nutritional influences, and the concept of “place” for health and well-being. Here, the discussion detailed the roles of air and water for health. The Hippocratic texts also coached doctors to

 

Trust In Data Stewardship Is Healthcare Providers’ To Lose

Trust is a precursor to health engagement, I learned way back in 2008 when I collaborated with Edelman on the first Health Engagement Barometer in 2008. This chart illustrated data from that survey, showing that trust, authenticity and satisfaction were the top three drivers among consumers looking to engage for health. I attended the annual 2019 HIMSS conference in February for nearly a week of meetings, interviews, education sessions, company private salons, and social media check-ins with my fellow and sister HIMSS Social Media Ambassadors. One of the SMA objectives is to consider the Conference in advance and offer thoughts

 

Digital Health As A Basic Human Need – the Dentsu Digital Society Index 2019

We are all Homo informaticus these days, multi-channel, multi-platform beings using digital platforms. “Computing is not about computers anymore. It is about living,” Nicholas Negroponte wrote in Being Digital. He said that in 1995. In that quarter-century since Negroponte made that prescient observation, we come to better understand that being a Digital Society has its upsides and downfalls, alike. We need a “new needs model” for the digital age, asserts a new report, Human Needs in a Digital World, the 2019 Digital Society Index report from the Dentsu Aegis network. Taking Maslow’s Hierarchy of Needs as a basic construct, the Index

 

The Balance of Personalization and Privacy For Health/Care – Amazon and Beyond

“Is it possible to take personalization too far for consumers?” asks a paper on Privacy and Personalization from SmarterHQ. The answer is, “it depends.” Consumers are sending mixed messages to marketers about their preferences for being forgotten versus being engaged and recognized. This tension has extreme relevance for personal health and healthcare, as AI and data analytics become quickly adopted by payors, insurance companies, providers, pharma, and consumer tech companies that lie outside of HIPAA privacy and security regulations. SmarterHQ polled over 1,000 consumers and found that: Most consumers are concerned about their data privacy, and believe that companies know too

 

Open Table for Health: Patients Are Online For Health Search and Physician Reviews

Seeking health information online along with researching other patients’ perspectives on doctors are now as common as booking dinner reservations and reading restaurant reviews, based on Rock Health’s latest health consumer survey, Beyond Wellness for the Healthy: Digital Health Consumer Adoption 2018. Rock Health has gauged consumes’ digital health adoption fo a few years, showing year-on-year growth for “Googling” health information, seeking peer patients’ physician and hospital reviews, tracking activity, donning wearable tech, and engaging in live telehealth consultations with providers, as the first chart shows. The growth of tracking and wearable tech is moving toward more medical applications beyond fitness

 

HIMSS 2019: The Mainstreaming of Health IT, from Jim Cramer to Opioid Risk Scores

On January 10, 2019, Jim Cramer of CNBC’s Mad Money recommended that Apple buy Epic, a market leader in EHRs. At that moment in the Twitterverse, it occurred to me that health IT as a consumer-facing industry was beginning to mainstream in America. Cramer’s pronouncement led to a tweetstorm where hundreds of tweeters in and outside of health/care talked back and with Cramer. A few of my favorite comments were: “Jim Cramer needs a crash course in FHIR standards” from the wonkier section of peanut gallery. “They are not even in the same universe” among people dissing the idea in

 

The Digital Health Consumer According to Rock Health

Looking for health information online is just part of being a normal, mainstream health consumer, according to the third Rock Health Digital Health Consumer Adoption Survey published this week. By 2017, 8 in 10 U.S. adults were online health information hunters. Six in 10 Americans looked for reviews of healthcare providers online, another new-normal consumer digital health activity. But only one in four people had used wearable technology for health, and one in five had participated in a live video telemedicine encounter. The Rock Health team observes that “the needle has not moved equally across every type of digital health solution.” Thus the

 

The Cost of a Healthcare Data Breach is $408 Per Stolen Record, 3X the Industry Average

The cost of a healthcare data breach is $408, nearly three-times the cross-industry average, revealed in the 2018 Cost of a Data Breach Study: Global Overview, from IBM Security and the Ponemon Institute. The average cost per lost or stolen record across all sectors is $148, Ponemon gauged. If you track cybersecurity and data breaches, Ponemon Institute is a go-to resource; I’ve discussed their research here in Health Populi on hacked medical information as a new-normal. This is the eighth year in a row that healthcare organizations had the highest costs associated with data breaches per lost or stolen record. Ponemon

 

In This Eroding Era of Trust, Consumers Look to Doctors Above Banks and Retailers for Trusted Sharing

In this moment post-Cambridge Analytica/Facebook, the launch of the GDPR, and the everyday-ness of data breaches, consumers most trust doctors for sharing personal information. I’ve mined, through my health economic lens, the U.S. data published in the insightful report, Data Privacy: What the Consumer Really Thinks, a global research study from Axciom and the Data & Marketing Association (recently acquired by the Association of National Advertisers) working with Foresight Factory. The report compares consumers’ personal views on privacy and trust in ten countries: Argentina, Australia, Canada, France, Germany, the Netherlands, Singapore, Spain, the UK, and the US. We learn that Americans

 

Healthcare Information In-Security Is the New Normal

Three-fourths of healthcare providers experienced a data breach in 2017, according to the HIMSS 2018 Cybersecurity Survey. Health data insecurity is the new normal. A big piece of addressing the cybersecurity healthcare challenge is educating people who work in healthcare settings, and that has been under-funded. Only 41% of healthcare workers say they receive security training, a Forrester study learned in January 2018. Forrester also found that while healthcare organizations have experienced some of the most egregious cyberattacks, the industry allocates a smaller proportion of IT budgets to security compared with than other organizational types at a rate of 22%

 

Consumer Trust, Privacy and Healthcare – Considering #HIMSS18 in the Stark Light of Facebook and Cambridge Analytica

What a difference a couple of weeks make…. On 1st March 2018, two over-arching issues remained with me leaving Las Vegas and #HIMSS18: the central, recognized role of cybersecurity threats in healthcare, and the growing use of consumer-facing technologies for self- and virtual care. Eighteen days later, we all learned about Cambridge Analytica’s misuse of 50 million Americans’ social network data posted on Facebook. We who work in healthcare must pose the questions: going forward, how trusting will patients, consumers and caregivers be sharing their personal health information (PHI)? Will people connect dots between their Facebook lives – and their

 

How the Latest on Facebook and the “Deep State” Could Undermine Patient Data Sharing and AI

There’s a potential large obstacle that could prevent the full benefits of the current go-go, bullish forecasts for artificial intelligence (AI) to help make healthcare better: a decline in consumers’ willingness to share their personal data. Along with the overall erosion of peoples’ trust in government and other institutions comes this week’s revelations about Facebook, Cambridge Analytica, and the so-called Deep State. Three-fourths of Americans believe that some type of “Deep State” in the federal government exists, a new poll from Monmouth University published yesterday. I clipped the responses to three of the survey’s most relevant questions here. Not only

 

How One Hospital System Baked Love Into Their Health App

On July 18, 2017, Neil Gomes, Chief Digital Officer at Thomas Jefferson University and Jefferson Health in Philadelphia, tweeted this: When I saw this tweet, I was especially struck by Gomes’s phrase, “Designed & developed with heart/love by my @DICEGRP.” That’s Jefferson’s health solutions group that focuses on digital innovation and consumer experience. Here’s a health system that’s focused on that customer experience, which has become a critical success factor for healthcare to thrive. That’s because, as Steve Laughlin, VP and General Manager of IBM’s Global Consumer Group recently explained to me, a consumer’s last great customer experience becomes the

 

#Engage4Health: How Patients Are Morphing Into Healthcare Consumers, for #HIMSS18

This blog appears today as part of a #HIMSS18 primer series for attendees, and the industry at large, to discuss major health IT issues that will help move health and healthcare delivery forward in 2018 – and beyond. I’m grateful to HIMSS to be one of 20 Social Media Ambassadors appointed for this year’s conference, which convenes in Las Vegas at the Sands Expo Center from March 5 to 9th, 2018.  Prioritizing the patient-as-consumer through my health economic lens, the biggest priorities will be: Engaging patients in self-care and driving health and health plan literacy to better manage constrained access

 

Evidence is Growing for Using Digital Health Apps, Says IQVIA

The evidence of the value of digital health tools is growing, based on research published in The Growing Value of Digital Health, from the IQVIA Institute for Human Data Science. With this report, the IMS Institute ushers in the organization’s new name, IQVIA Institute (THINK: “I” for “IMS,” and “Q” for “Quintiles). This is the organization’s third report on digital health, following the original analysis from 2013, updated in 2015. Here’s my take on the 2013 report, which found that 36 mobile health apps represented one-half of all downloads. On a conference call held last week, the company’s SVP and Executive

 

Health/Care Data Ecosystems E-merge at CES 2017

Digital health innovations were fast-proliferating at CES 2017. The bad news is there are so many of them, it’s dizzying and fragmented. The good news is that there are emerging health data ecosystems that will streamline consumers’ user experience so that people can derive knowledge, actionable advice and value out of using these tools. Walking miles of aisles in the Sands Convention Center in the first week of January 2017 can be a dizzying prospect, with hype and best-faces-forward in every single exhibitor at the show. In the health segment at CES, there’s a long list of digital tools to

 

“What If 1 Million Americans Asked for Medical Records on the Same Day?”

This was not a theoretical question Dr. Farzad Mostashari, former head of the Office of the National Coordinator of Health IT in the Department of Health and Human Services, asked yesterday at the closing keynote of Day 1 of the Patient Engagement Forum. Dr. Mostashari issued a challenged to the community of mischief-makers in health/tech patient advocacy: tell everyone you know to contact their doctors — by phone, email, patient portal, or in-person, on one designated day which he called a “Day of Action.” Health IT journalist Neil Versel (disclosure: also a long-time friend in the field) covered this news

 

The Internet of Things in health care – technology for good in HuffPo

As sensors begin to proliferate our “Things,” from refrigerators to cars, toasters to t-shirt, our health could benefit mightily. Approaching this weekend’s South-by-Southwest Interactive meet-up in Austin, several authors have crowdsourced views on using technology for good in ImpactX, a special section in the Huffington Post sponsored by Cisco. I was asked to develop a view on using technology for good — for health and health care. Here’s my offering: How the Internet of Things Can Bolster Health. The promise of sensor-laden stuff in our lives can work for personal and public health in myriad ways — from perceiving impending epidemics

 

Privacy and the Internet of Your Healthy Things – the FTC says less (data) is more

The FTC has weighed in on privacy and security and the Internet of Things (IoT) in a report published on 27th January 2015. When it comes to IoT and devices that connect to the internet, the FTC will focus on Enforcing privacy laws Educating consumers and business on privacy and security for connected devices Participate in multi-stakeholder groups such as the NTIA’s team considering guidelines for facial recognition, and Advocate with other agencies, at the state level, and with courts. The report summarizes input received in a FTC workshop conducted in November 2013 with IoT industry experts, and offers recommendations

 

Health and wellness at CES 2015 – trend-weaving the big ideas

Health is where we live, work, play and pray — my and others’ mantra if we want to truly bend (down) the cost curve and improve medical outcomes. If we’re serious about achieving the Triple Aim — improving public health, lowering spending, and enhancing the patient/health consumer experience (which can drive activation and ongoing engagement) — then you see health everywhere at the 2015 Consumer Electronics Show in Las Vegas this week. With this post, I’ll share with you the major themes I’m seeing at #CES2015 related to health, wellness, and DIYing medical care at home. The meta: from health care to self-care.

 

People don’t know much about patient portals: Xerox’s 5th EHR study

The Field of Dreams works in nostalgic plotlines about baseball, but as I’ve pointed out since the advent of consumer-facing health technologies, there’s no Field of Dreams effect in health care when it comes to consumer health engagement. U.S. health consumers aren’t using the patient portals that health care providers have built as part of their efforts to bolster health engagement via EHRs and health IT, Xerox found in the company’s 5th annual survey on electronic health records. I spoke with Tamara St. Claire to discuss the implications of the consumer poll, which was conducted among 2,017 U.S. adults in

 

Irrational exuberance in mobile health? Live from the mHealth Summit 2014

Mobile and digital technologies will bend the health care cost curve, drive individual and population health, and solve the nagging challenge of health disparities. Mobile and digital technologies will increase costs to health providers, disrupt work flows and lower clinicians’ productivity, and hit a market bubble. Depending on your lens into mHealth, and what product categories and user segments you’re looking at, all of the above can be true. The plenary session of the 2014 mHeath Summit kicked off with Dr. Harry Leider, Chief Medical Information Officer of Walgreens, who spoke of the pharmacy’s evolving role across the entire continuum of care,

 

Dr Eric Topol on the digital democratization of health care

Moore’s Law is coming to medicine. And it will look and feel a lot like Uber: with rich technology underpinning,  consumer-service oriented and friendly, and shaking up the professionals at the front line of the business (from taxi drivers to physicians). Eric Topol, physician and editor-in-chief at Medscape, told a standing-room-only audience at the kickoff of the 8th annual Health 2.0 Conference that the democratization of health care is coming based on consumers’ use of eight drivers: sensors, labs, imaging, physical exams, access to medical records, transparency of costs, and digital pills. Dr. Topol referred to the cover ot TIME

 

Big Data Come to Health Care…With Big Challenges – Health Affairs July 2014

“For Big Data, Big Questions Remain,” an article by Dawn Falk in the July 2014 issue of Health Affairs, captures the theme of the entire journal this month. That’s because, for every opportunity described in each expert’s view, there are also obstacles, challenges, and wild cards that impede the universal scaling of Big Data in the current U.S. healthcare and policy landscape. What is Big Data, anyway? It’s a moving target, Falk says: computing power is getting increasingly powerful (a la Moore’s Law), simpler and cheaper. At the same time, the amount of information applicable to health and health care

 

Privatizing health privacy in the US?

8 in 10 people in the U.S. believe that total privacy in the digital world is history, based on a survey from Accenture conducted online in March and April 2014 and published in the succinctly-titled report, Eighty Percent of Consumers Believe Total Data Privacy No Longer Exists. 84% of U.S. consumers say they’re aware what tracking personal behavior can enable – receiving customized offers and content that match one’s interests. At the same time, 63% of people in the U.S. also say they have a concern over tracking behavior. Only 14% of people in the U.S. believe there are adequate safeguards

 

The Season of Healthcare Transparency – Will Your Health Plan Be Your Transparency Partner? – Part 3

Three U.S. health plans cover about 100 million people. Today, those three market-dominant health plans — Aetna, Humana and UnitedHealthcare — announced that they will post health care prices on a website in early 2015. Could this be the tipping point for health care transparency so long overdue? These 3 plans are ranked #1, #4 and #5 in terms of market shares in U.S. health insurance. Together, they will share price data with the Health Care Cost Institute (HCCI), a not-for-profit organization dedicated to research on U.S. health spending. An important part of the backstory is that the HCCI was

 

In a world of digital health data, more sick people trade off privacy risks

People managing chronic diseases are more likely to have accessed information in their electronic medical records — and are also less likely to worry about the privacy risks of their personal electronic health information compared with people who are healthy. Over 2,000 people, both those who say they’re healthy and those with chronic conditions, were surveyed by Accenture in February-March 2014, and their responses are summarized in the report, Consumers with Chronic Conditions Believe the Ability to Access Electronic Medical Records Outweighs Concern of Privacy Invasion. Slight more consumers are concerned about privacy risks related to online banking, online shopping,