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Rebel Health: The Personal and Professional Passion of Susannah Fox

A “rebel” is both a noun and a verb. As a noun, Merriam-Webster tells us that a rebel is a person who opposes or takes up arms against a government or a ruler. As a verb, “to rebel” is to oppose or disobey one in authority or control, or otherwise renounce and resist by force the authority of one’s government.” An additional definition of the verb is, “to feel or exhibit anger or revulsion.” If you’ve been a patient facing a diagnosis of an illness, whether rare or common, you may well have felt these various feelings stirring inside your self.

 

Ethics for AI in Health – A View From The World Health Organization

For health care, AI can benefit diagnosis and clinical care, address paperwork and bureaucratic duplication and waste, accelerate scientific research, and personalize health care direct-to-patients and -caregivers. On the downside, risks of AI in health care can involve incomplete or false diagnoses, inaccuracies and errors in cleaning up paperwork, exacerbate differential access to scientific knowledge, and exacerbate health disparities, explained in the World Health Organization’s (WHO) report, Ethics and governance of artificial intelligence for health.             WHO has released guidance on the use of large multi-modal models (LMMs) in health care which detail 40+ recommendations for

 

Access to Technology Is the New Pillar for Well-Being: CES & the UN Partner for Human Security for All

In kicking off #CES2024, CTA’s researchers noted the acceleration of global connectivity, with gaps in peoples’ ability to connect depending where they live: by region, the percent of people connected to the internet today are, according to CTA’s data, 92% in the U.S. 87% in the E.U. 76% in Latin America 73% in China 55% in Nigeria 46% in India. Such gaps in connectivity threaten peoples’ individual well-being, but also social and political stability that impacts the entire world’s security. And not to overlook, as well, the promise of AI to do good at scale at the enterprise-level, globally.  

 

Be Thankful by Engaging With Grace and Talking About Your End-of-Life Wishes With Loved Ones

“Thanksgiving.” Merriam-Webster’s dictionary defines the word, first, as “the act of giving thanks.” Second, it’s “a prayer of expressing gratitude.” And, third, the word means a public acknowledgment or celebration of divine goodness. We each have our own stories about how a loved one’s life has ended. If we’re lucky, that beloved person had a good death: in sleep, perhaps, or simply of old age with no hospital events or trauma. Then there are the Rest-of-Us who share family stories and experience of long and painful endings, in institutional settings often coupled with costly, so-called “heroic” but unwanted futile care.

 

Everybody is Stressed in America, and It’s Not Good for Our Health: the 2023 Update from the American Psychological Association

The U.S. is “a nation recovering from collective trauma,” the according to the latest survey on Stress in America 2023 from the American Psychological Association (APA).             The APA has been quantifying Stress in America since 2007; for context, at the end of that year The Great Recession kicked in, and in response President Obama’s team put together assistance to bolster the national economy, jobs, and health technology (codified in the American Recovery and Reinvestment Act). American health citizens are experiencing a deja vu in 2023 akin to their financial stress experienced in the APA 2008 Stress

 

AI is the New Health Literacy Challenge for Patients and the Health/Care Industry

Patients’ comfort in artificial intelligence is linked to familiarity with the technology, a consumer survey from GlobalData learned. Among patients unfamiliar with AI, 42% are uncomfortable, and another 50% feel neither comfortable nor uncomfortable with the technology. However, among patients familiar with AI, 60% feel comfortable with visiting a medical practice that uses AI. Welcome to the new health literacy challenge the health care sector will have to deal with, and soon: lack of patients’ awareness of AI, its promises and pitfalls.             “It is imperative to prioritize patient education regarding this technology,” Urte Jakimaviciute

 

“Healthcare Isn’t Healthy:” the Global Challenge of Health Equity, and Calls-to-Action

Discrimination in health care is reported by more people in the U.S. than in Germany, Spain, or the U.K., we learn in the research reported in The Intersection of Health Equity in Communities & Business Strategy: A Call-to-Action, from Omnicomm PR Group (OPRG) and Atlantic Insights.                          The study was conducted among 6,000 people living in Germany, Spain, the United Kingdom and the United States, fielding 1,500 interviews in each of the four countries in March 2023. The U.S. survey sample included 375 people identifying as Black, White, Hispanic, or

 

The Elevator, Trust and the Data Commons: Bart de Witte Makes the Case for Open AI for Health at WHO/Europe

“I’m in Berlin, and we don’t like walls,” Bart De Witte responded in a concluding Q&A session yesterday at the 2nd Symposium on the Future of Health Systems, convened by the World Health Organization (WHO) in Porto on 5th September.               Over two days, this meeting convened stakeholders focused on WHO’s European Region to support the Organization’s digital health action plan for 2023-2030 – which fosters cross-nation health planning covering the EU space. AI’s promise in health care to automate and streamline administration, and augment diagnosis and treatment, comes with accompanying risks that can

 

From Managing Healthcare Providers’ Costs to “Revolutionizing” Care – Bain Looks at the Short- and Long-Term for Generative AI

“Generative AI already has the power to alleviate some of providers’ biggest woes, which include rising costs and high inflation, clinician shortages, and physician burnout,” Bain & Company observe in Beyond Hype: Getting the Most Out of Generative AI in Healthcare Today. By the end of this paper, the Bain team expects that those health care leaders who are investing in generative AI today (to start small, to win big in the report’s words) will learn key lessons that will put them “on a path to eventually revolutionize their businesses.” Bain & Company surveyed U.S. health system leaders to gauge their

 

Women’s Health on Her Own Terms – “She Knows” What She Needs

Despite some improvement in the representation of women by cinema, TV shows, and brands, distortions in media remain that are risks to women receiving appropriate health care. Breaking through taboos of weight, reproductive services, and mental health are the top 3 factors preventing women from getting proper care, according to Health On Her Terms, a research study from WPP and Ogilvy partnering with SeeHer, an organization of collaborations from media, technology, business, education, and other sectors (including over 7,000 brands) focused on the accurate portrayal of women and girls in society. Taglined as “The Marketer’s Hippocratic Oath to Women, the

 

How Will Consumers’ Declining Trust in Technology Impact Health Tech?

Americans’ trust in technology as “plummeted” in the past decade, according to the 2022 Edelman Trust Barometer’s focused look on trust and technology. How might this play into U.S. health citizens’ trust in digital health technology?             To answer that, let’s start with the macro-view on trust in tech. Richard Edelman convened a virtual meeting launch for the Trust Barometer’s tech perspectives yesterday, looking broadly at the global study findings. For these trust-tech insights, Edelman surveyed 15,000 citizens between August 31 and September 12, 2022, residing in 12 countries: Australia, Brazil, Canada, China, France, Germany,

 

Hacking Health Care, Your Top Health-Tech Summer Read

“Tom Lawry reminds us that the health care industry can shift from glacial to warp speed when it needs to. Given the right tools, we can evolve from health systems to systems of health, baked with Responsible Intelligence to do good while embedded with respect, inclusion, and transparency. Health citizens deserve Tom’s vision to emerge,” I wrote in a quote on the back of Tom’s new book, Hacking Health Care: How AI and the Intelligence Revolution Will Reboot an Ailing System.                 Tom knows whereof he speaks and writes and opines: he has

 

The Retail Health Battle Royale in the U.S. – A Week-Long Brainstorm, Day 3 of 5 – Apple as “Intelligent Health Guardian”

Apple wants to be your “intelligent guardian for health,” based on a 60-page paper shepherded by Jeff Williams, the company’s Chief Operating Officer.             Published last week, the paper is one of the big signals trumpeted this U.S. summer marked by the BA.5 omicron subvariant of SARS-CoV-2, inflation pressures on our household budgets, social/political tensions, and hot-hot weather. I’m folding the report into my coverage this week on the Retail Health Battle Royale today, Day 3 of my week-long series updating us on the health/care ecosystem. For the previous two days’ posts, see… Day 1

 

More Americans Trust Small Biz and the Military than the Medical System, Gallup Finds

The most trusted institutions in the U.S. are small business and the military, the only two sectors in which a majority of Americans have confidence. Americans’ trust in institutions hit new historic lows in 2022, Gallup found in its latest poll of U.S. sentiment across all major sectors.                 Today, more Americans have faith in the police than in the medical system, according to a Gallup poll finding that Confidence in U.S. Institutions Down; Average at New Low. published this week of Independence Day 2022. Confidence runs from a higher of 68% for

 

Love and Health: The Education of Abner Mason, SameSky Health

It felt super appropriate that I met up with Abner Mason, Founder of SameSky Health, on Valentine’s Day 2022. While we conversed via Zoom, Abner’s positive energy vibrated over the 5,600 miles between him in LA County and me in Brussels, Belgium – nine hours apart, but in the proverbial same room in the conversation. My initial ask of Abner was to discuss the re-branding of ConsejoSano to SameSky Health, but I first wanted to hear the man’s origin story. And that, you will learn, has everything to do with loving parents, the power of education from a young age,

 

Building Health Equity Through Faith and Food – the Black Church Food Security Network

Members of his congregation kept going to the hospital with diet-related issues, Reverend Dr. Heber Brown, III, realized. “I got tired of praying and hoping they made it and walked out,” Reverend Brown realized. And then… “God gave us an idea and vision to be proactive on the issue of health in our congregation,” Rev. Brown explained to us yesterday on Day 2 of Real Chemistry’s Health Equity Summit. This was the seed for the Black Church Food Security Network, planting a pragmatic vision for health and well-being weaving together local food, civic empowerment, economic development, and faith. “We had

 

Consumers Embrace Tech But Privacy Remains a Concern – The Morning Consult Poll of Consumers and Tech

With the collective pandemic-era pivot of people working from home, remote schooling at home, repurposing our homes for entertainment and fitness, and showing off home-baked goods on Instagram, has consumers’ comfort with new technologies accelerated? Morning Consult assessed this question in a poll timed to coincide with CES 2022, the annual conference dedicated to innovations in consumer electronics. “Is the public ready for the innovations coming out of the 2022 Consumer Electronics Show?” the Morning Consult team asked. “While brands may enjoy the initial buzz over these launches, it often takes a while for the public to become comfortable enough

 

The Biggest Threat to Our Health Isn’t the Next Pandemic or Cancer…It’s Climate Change

Before the coronavirus emerged, the top causes of death in developed countries were heart disease, cancers, diabetes, and accidents. Then COVID-19 joined the top-10 list of killers in the U.S. and the issue of pandemic preparedness for the next “Disease X” became part of global public health planning. But the biggest health threat to human life is climate change, according to a new report from the World Health Organization titled The Health Argument for Climate Action. It’s WHO’s special report on climate change and health, dedicated to the memory of Ella Kissi-Debrah — a child who died succumbing to impacts

 

A Nutrition Label for Health IT

“Shouldn’t we, as a society, demand a nutrition label on our algorithms?” asked Dr. John Halamka. Dr. Halamka, President of the Mayo Clinic Platform, was speaking at the HIMSS 2021 annual conference on the meeting’s digital channel. Artificial intelligence and health equity were two key themes discussed during #HIMSS21, and Dr. Halamka’s concerns echoed through the week-long event. To illustrate the need for a healthier approach to AI, he offered this scenario: “If I use a data set of one million Scandinavian Lutherans to create the most amazing EKG algorithm ever and then we decide to use it in Spain,

 

Health Disparities in America: JAMA Talks Structural Racism in U.S. Health Care

“Racial and ethnic inequities in the US health care system have been unremitting since the beginning of the country. In the 19th and 20th centuries, segregated black hospitals were emblematic of separate but unequal health care,” begins the editorial introducing an entire issue of JAMA dedicated to racial and ethnic disparities and inequities in medicine and health care, published August 17, 2021. This is not your typical edition of the Journal of the American Medical Association. The coronavirus pandemic has changed so many aspects of American health care for so many people, including doctors. Since the second quarter of 2020,

 

Our Pandemic Lessons: Listening to Michael Dowling – a #HIMSS21 Wrap-Up

“We don’t un-learn,” Dr. Amy Abernethy asserted as she shared her pandemic perspectives on a panel with 2 other former U.S. health policy and regulatory leaders. The three spoke about navigating compliance (think: regulations and reimbursement) in an uncertain world. An uncertain world is our workplace in the health/care ecosystem, globally, in this moment. So to give us some comfort in our collective foxhole, my last post for this week of immersion in #HIMSS21 is based on the keynote speech of Michael Dowling, CEO of Northwell Health. Dowling keynoted on the theme of “Leading for the Future,” sharing his lessons

 

IoT and The Rise of the Machines in Healthcare

As connected devices proliferate within health care enterprises and across the health care ecosystem, cybersecurity risks abound. During the first year of the COVID-19 pandemic, the health care sector was profoundly affected by cyber-attacks on connected devices, we learn in the report, Rise of the Machines 2021: State of Connected Devices – IT, IoT, IoMT and OT from Ordr. For this annual report, Ordr analyzed security risks across over 500 deployments in healthcare, life sciences, retail, and manufacturing sectors for the 12 months June 2020 through June 2021. In health care, outdated operating systems present some of the greatest risks:

 

Aduhelm and Alzheimer’s Disease: A Potential Medicare Budget-Buster Puts A Blazing Light on Health Care Costs and Innovation

The FDA’s approval of the first therapy to treat Alzheimer’s Disease in over twenty years brought attention to a not-yet-convened debate of U.S. health care costs and spending, innovation, and return-on-the-investment (as well as “for whom” do the returns accrue). In my latest post for Medecision, I explore different angles on the Aduhelm and Alzheimer’s discussion, covering: The macro- and micro-economics of Alzheimer’s and the $56,000 list price for the drug The FDA regulatory process and aftermath U.S. consumers’ bipartisan support for drug price regulation through Medicare negotiation and private/commercial sector adoption Congressional legislation addressing the price of medicines in

 

The Pandemic Accelerated Consumers’ Digital Health Tech Ownership As Big Tech Morphs To Big Health

The pandemic ushered in millions of peoples’ first digital health experiences, many of which will persist according to the 23rd Annual U.S. Consumer Technology Ownership & Market Potential Study, published by the Consumer Technology Association. CTA conducted an online survey among 2,409 U.S. adult 18 and over in April 2021 to gather data for this annual report. To ensure a fair sample, CTA drew three datasets for the general population along with an Hispanic oversample and an oversample for people 65 years of age and older. The study looked at 83 consumer technology products and sub-categories, including many directly related

 

Trust in Healthcare is Under Stress in the US and Globally, Edelman Finds

You’re stressed, I’m stressed; most of us have felt stress in the COVID-19 era which began in the U.S. in the first quarter of 2020. Nearly eighteen months later, a 2021 Edelman Trust Barometer update finds that consumers’ trust in the health care industry is under stress, too — in the U.S. and around the world. The first chart from the Edelman health care update demonstrates that in most countries polled, health citizens’ trust in health care was buoyed in the first five months of 2020 (January through May): up 18 points in the U.S., 14 points in Canada and

 

Health Disparities and the Risks of Social Determinants for COVID-19 – 14 Months of Evidence

In April 2020, the U.S. Centers for Disease Control issued a report featuring evidence that in the month of March 2020, the coronavirus pandemic was not an equal-opportunity killer. Within just a couple of months of COVID-19 emerging in America, it became clear that health disparities were evident in outcomes due to complications from the coronavirus. An update from that early look at differences in COVID-19 diagnoses and mortality rates was published in Health Disparities by Race and Ethnicity During the COVID-19 Pandemic: Current Evidence and Policy Approaches, In this report, the Assistant Secretary for Planning and Evaluation, part of

 

Trust-Busted: The Decline of Trust in Technology and What It Means for Health

Trust in the technology industry has crashed to an all-time low based on the 2021 Edelman Trust Barometer. As Richard Edelman, CEO, concisely asserted, “Tech loses its halo.” The first chart shows the one-year trend on trust across industries through U.S. consumers’ eyes. Most industries lost citizens’ trust between 2020 and 2021, most notably, Technology, dropping the greatest margin at 9 points Retail, falling 7 points, Entertainment. falling 5 points, and, Fashion and automotive declining by 4 points. Several sectors’ trust equity rose in the year, especially healthcare growing by 8 points and food and beverage rose slightly by 2

 

Managing the Risks of Fast-Growing Digital Health

Investments in the digital health sector have fast-grown in the past decade, reaching $14bn in 2020 based on Rock Health’s latest read on the market. The COVID-19 pandemic accelerated the field across many industry segments. With such turbocharged growth on the supply side, Beazley, experts in specialty insurance, explores the risks of digital health and wellness in a new report, Digital health, telehealth and wellness: Attitudes to risk and insurance. With great potential for both innovation and reward comes great risks: Beazley points to the facts that, over two-thirds of digital health companies lack insurance coverage for medical malpractice for

 

The Patient Safety Issue of Racial Disparities and the Opportunity for “Health Equity By Design”

In 2021, racial and ethnic disparities in healthcare are a top patient safety issue, according to ECRI’s annual list of major concerns facing healthcare consumers’ risks to adverse events that can harm them. ECRI has published their annual Top 10 list since 2018, when the list featured diagnostic errors, o behavioral health needs in acute care settings, and patient engagement and health literacy — all of which play into this year’s #1 issue, racial and ethnic disparities in health care. In fact, among the risks in this year’s Top Ten list, eight were accelerated and highlighted by the COVID-19 pandemic

 

The Most Relevant Companies in Health Care – Learning from the W2O Group

Five years ago, in 2016, the W2O Group said that, “Relevance is reputation.” That year the firm began to study the relevance of, well, relevance for organizations especially operating in the health/care ecosystem. 2020 changed everything, the W2O team asserts, now issuing its latest look into the issue through the Relevance Quotient. Relevance is built on recognizing, meeting and exceeding stakeholder expectations of organizations. In the Relevance Quotient methodology, W2O Group defines key stakeholders as employees, patients (including the sick and the well, caregivers, consumers, et al), health care providers, advocacy groups, analysts and investors, policy makers, journalists and media outlets.

 

The Digital Transformation of Patients – Update from Rock Health and Stanford

The coronavirus pandemic accelerated digital transformation of organizations, including health care providers. But another patient side-effect of COVID-19 has been the digital transformation of many patients, documented by data gathered by Rock Health and Stanford Center for Digital Health and analyzed in their latest report explaining how the public health crisis accelerated digital health “beyond its years,” noted in the title of the report. Rock Health and Stanford commissioned an online survey among 7,980 U.S. adults from early September to early October 2020 to gauge peoples’ interest in and utilization of digital health tools and telehealth. Rock Health has conducted a consumer digital

 

The Remarkable Rise of Pharma’s Reputation in the Pandemic

The reputation of the pharmaceutical industry gained a “whopping” 30 points between January 2020 and February 2021, based on the latest Harris Poll in their research into industries’ reputations. The study was written up by Beth Snyder Bulik in FiercePharma. Beth writes that, “a whopping two-thirds of Americans now offer a thumbs-up on pharma” as the title of her article, calling out the 30-point gain from 32% in January 2020 to 62% in February 2021. Thanks to Rob Jekielek, Managing Director of the Harris Poll, for sharing this graph with me for us to understand the details comparing pharma’s to

 

Ensuring That Humanity Retains Control of Connected Things: A Message from Microsoft at CES 2021

Artificial intelligence (AI) has begun to play a role in health care for predictive analytics, personalization, and public health. On 26th January, I’ll moderate a tweetchat at 1 pm Eastern time, brainstorming the current and future state of and opportunities for AI in health care. I’ll be co-chatting with Microsoft’s AI leader, Tom Lawry (@TCLawry on Twitter). In advance of that discussion, I wanted to feature remarks shared by Brad Smith, Microsoft President, that I recently heard at CES 2021, the annual (this year, virtual) meeting convening the largest community of consumer electronics stakeholders globally Smith wove a crucial, impactful

 

Our Homes Are Health Delivery Platforms – The New Home Health/Care at CES 2021

By Jane Sarasohn-Kahn on 18 January 2021 in Aging, Aging and Technology, Baby health, Big data and health, Bio/life sciences, Bioethics, Boomers, Broadband, Business and health, Connected health, Consumer electronics, Consumer experience, Consumer-directed health, Coronavirus, COVID-19, Data analytics and health, Demographics and health, Dental care, Design and health, Diagnostics, Digital health, Digital therapeutics, Electronic medical records, Exercise, Fitness, Food and health, GDPR, Grocery stores, Guns and health, Health and Beauty, Health at home, Health care marketing, Health citizenship, Health Consumers, Health costs, Health disparities, Health Economics, Health ecosystem, Health engagement, Health equity, Health marketing, Health media, Health Plans, Health policy, Health politics, Health privacy, Health regulation, Healthcare access, Healthcare DIY, Heart disease, Heart health, HIPAA, Home care, Hospitals, Housing and health, Internet and Health, Internet of things, Medical device, Medical innovation, Nutrition, Obesity, Oral care, Patient engagement, Patient experience, Pharmacy, Physicians, Popular culture and health, Prevention and wellness, Primary care, Privacy and security, Public health, Remote health monitoring, Retail health, Robots and health, Safety net and health, SDoH, Self-care, Sensors and health, Sleep, Smartwatches, Social determinants of health, Social responsibility, Sustainability, Telehealth, Telemedicine, Transparency, Trust, Virtual health, Wearable tech, Wearables, Wellbeing

The coronavirus pandemic disrupted and re-shaped the annual CES across so many respects — the meeting of thousands making up the global consumer tech community “met” virtually, both keynote and education sessions were pre-recorded, and the lovely serendipity of learning and meeting new concepts and contacts wasn’t so straightforward. But for those of us working with and innovating solutions for health and health care, #CES2021 was baked with health goodness, in and beyond “digital health” categories. In my consumer-facing health care work, I’ve adopted the mantra that our homes are our health hubs. Reflecting on my many conversations during CES

 

Trust Plummets Around the World: The 2021 Edelman Trust Barometer in #CES2021 and Microsoft Context

Citizens around the world unite around the concept that Trust is Dead. This is no truer than in the U.S., where trust in every type of organization and expert has plummeted in the wake of the COVID-19 pandemic, political and social strife, and an economic downturn. Welcome to the sobering 2021 Edelman Trust Barometer, released this week as the world’s technology innovators and analysts are convening at CES 2021, and the annual JP Morgan Healthcare meetup virtually convened. As the World Economic Forum succinctly put the situation, “2020 was the year of two equally destructive viruses: the pandemic and the

 

The 2021 Shkreli Awards: Lown Institute Counts Down the Top 10 Healthcare Industry Abuses in the Coronavirus Pandemic

The first year of the coronavirus pandemic in America was a kind of stress test on the U.S. health care system, revealing weak links and opportunities for bad behavior. “These are not just about individual instances or bad apples,” Dr. Vikas Saini, President of The Lown Institute, explained, referring to them as “cautionary tales” of the current state of U.S. health care. Dr. Saini and his colleague Shannon Brownlee released the annual Lown Institute 2020 Shkreli Awards this week, highlighting their ten most egregious examples of the worst events in U.S. health care that happened in the past year —

 

Vaccine Hesitancy Is Greatest Among Those at Highest Risk of Dying from COVID-19: Black People

While 85% of people are open to receiving a COVID-19 vaccine, over one-half of them would want to wait some time to observe if after-effects developed in people who took the jab, according to a new study from Acxiom, the data analytics-marketing company. Not all people are as enthused about getting a coronavirus vaccine at all, Acxiom discovered: in fact, those hardest hit by the virus — Black people — would be the least-likely to want to get a COVID-19 vaccine, discussed in in Vaccine Hesitancy in the U.S., a survey the company conducted among 10,000 people in the U.S.

 

Data Well-Being: A Pillar of Health Citizenship for US Consumers

In the COVID-19 era, most U.S. consumers believe they have an obligation to share personal health information to stop the spread of the coronavirus. However, only 44% would be willing to share their personal data with a national database, a MITRE study learned. Only one-third of Americans would be willing to share their temperature, 29% their location, and one-fourth information about their chronic conditions. The Harris Poll conducted the study among 2,065 U.S. adults 18 and over in mid-June 2020 to gauge peoples’ perspectives on health data and privacy. Three-quarters of people in the U.S. believe that data privacy “is a

 

The Unsurprising Surprise of Social Determinants in COVID-19 Mortality

“Covid-19 exposes America’s racial health gap,” asserts The Economist, the weekly news magazine based in London, UK, in an advanced essay dated 11 April 2020. The subtitle of the piece: “African-Americans appear more vulnerable to the virus.” The phrase, “your ZIP code is more important than your genetic code” has become the common mantra for public health people communicating the concept of the social determinants of health: those factors outside of medical services that shape peoples’ overall health and well-being. Two days ago, the Centers for Disease Control (CDC) published data that showed African-Americans were dying from complications of the

 

In the US COVID-19 Pandemic, A Tension Between the Fiscal and the Physical

“Act fast and do whatever it takes,” insists the second half of the title of a new eBook with contributions from forty leading economists from around the world. The first half of the title is, Mitigating the COVID Economic Crisis.  The book is discussed in a World Economic Forum essay discussing the economists’ consensus to “act fast.” As the U.S. curve adds new American patients testing positive for the coronavirus, the book and essay illustrate the tension between health consumer versus the health citizen in the U.S.  For clinical context, as I write this post on 24th March 2020, today’s U.S.

 

Why CTA’s Shepherding AI Is Important for Re-Imagining Healthcare

The Consumer Technology Association (CTA), collaborating with industry stakeholders, has ushered in a standard for artificial intelligence in health care.   CTA is the membership organization for companies that innovate, manufacture and market consumer-facing tech like big-screen TVs, slick new autos, video games and voice assistants. So what’s an organization like CTA doing with AI and health care? Let me connect the dots. Check out this graphic taken from my book, HealthConsuming: From Health Consumer to Health Citizen. This shows the ten categories of tech I revisit each year at CES, CTA’s annual mega-conference of new-new things in consumer electronics

 

Most Americans Are Curious and Hopeful About Genetics Research, But Privacy-Concerned

Most Americans associate more optimistic words with human genetics research than they do darker implications: “curious,” “hopeful,” “amazed.” and indeed “optimistic” ranked the top four impressions in peoples’ minds, based on a survey form the American Society of Human Genetics (ASHG). Below these perceptions are a few concerning concepts such as “cautious,” “concerned,” “hesitant, and “skeptical,” the poll found. Based on the relatively positive views on genetics research, most Americans support increasing Federal funding for that research: 74% said it was somewhat or very important to do so, compared with 15% saying it was not important. People value genetics research

 

Trust Is the Currency for Consumer Health Engagement – A Bottom-Line at CES 2020

There’s less talk about Bitcoin and cryptocurrency at #CES2020. The most important currency under discussion is Trust. We have begun a consumer electronics migration from the past decade of the Internet of Things to this next decade of the Intelligence of Things. The different “I’s” signal the transition from devices that have connected to the Internet and generated data from our everyday lives, to the next ten years of gathering that data, mashing it up for meaning, and feeding back intelligence to users in the form of advising, coaching, nudging — with potentially powerful feedback loops for health, wellness and

 

Will Technology Cure Americans’ Health Care System Ills? Considering Google and Ascension Health’s Data Deal

“Google’s ‘Project Nightingale’ Gathers Personal Health Data on Millions of Americans,” the Wall Street Journal reported in today’s paper and on the WSJ.com website. The story started with the scenario that, “Search giant is amassing health records from Ascension facilities in 21 states; patients not yet informed.” Here’s Ascension’s press release on the collaboration, described in the title as “healthcare transformation.” Note: this release was written after the Wall Street Journal published this story. And, according to the WSJ reporting, “Neither patients nor doctors have been notified. At least 150 Google employees already have access to much of the data

 

Learning from Dr. Eric Topol, Live from Medecision Liberation 2019

“Bold thinking is great. Bold doing is better,” Dr. Eric Topol introduced his talk yesterday at Medecision’s Liberation 2019 conference. I have the opportunity, for which I’m so grateful, of not only attending this meeting but playing a role as a speaker, a sometimes stage “emcee,” and a keynote speaker. And as an attendee, I learn so much from other speakers, fellow attendees, and Medecision staff all sharing perspectives during breakouts and networking breaks. In mode of attendee (and self-confessed collegial-groupie of Dr. Topol’s), I took in his remarks taking notes as fast as I could thanks to Mom teaching

 

Listening to Osler Listening to the Patient – Liberating Health Care at Medecision Liberation 2019

“Listen to your patient; he is telling you the diagnosis,” Dr. William Osler is quoted to have said around the turn of the 20th century. Dr. Osler had been a strong advocate for the physician-patient conversation to inform the doctor’s diagnostic acumen and improve patient outcomes. This year is the centennial of Dr. Osler’s passing, so it’s especially timely that I introduce this post with his legendary assertion in the context of kicking off the 2019 Medecision Liberation conference. This meeting convenes the company’s clients, partners, and staff to share best practices, spark insights and learnings, and enable networking between

 

The Monetary, Clinical and Ethical Value of Patient Data – A View from the UK and NHS

There are about 55 million patient records held by the United Kingdom’s National Health Service (NHS). Their monetary value to private sector companies would be £5 billion and nearly that much in patient benefits. Add in value for patient outcomes, and the total approaches £10 billion. In today’s UK:US currency exchange rate, 10 billion British pound sterling is worth roughly $12 billion. Realising the Value of Healthcare Data from EY explores how patient data can, in the words of the report, “unlock significant operational savings, enhanced patient outcomes, and wider economic benefits” for the NHS and patients through using artificial

 

A Matter of Trust, Perception, Risk, and Uncertainty – The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions

By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust           A Matter of Trust, by Billy Joel If you’re in health care and don’t live under a rock, you have probably heard that United Health Group (UHG) has acquired PatientsLikeMe (PLM).  After the announcement, there was a lot of sound and fury, some of which signified nothing, as the saying goes, and some which signified a lot.

 

Intent, Insiders/Outsiders and Insights — Disney Institute’s Women’s Leadership Summit

There are many forms of magic inspired by Disney, the company. There’s the obvious attraction, the Magic Kingdom, that was Walt’s original destination vision, “imagineered” in 1932. Then there are other kinds of magic. The one I’m deep into in the moment is inspiration, ideation, and “reimagineering” my own thinking about work, legacy, and social justice. I’m grateful to have had the opportunity to spend much of this week at the inaugural Disney Institute Women’s Leadership Summit. The Institute convened about 300 women (and a handful of brave “He-for-She” men keen on diversity) in Orlando to learn about and brainstorm

 

The Persistent Rural/Urban Broadband Gap Is Bad for Health

              In the U.S., rural residents’ access to broadband at home continues to lag behind urban and suburban dwellers, the Pew Research Group noted in a May 2019 research note on Americans’ use of technology. The Pew survey explored Americans’ adoption of technology and found that rural dwellers are also less likely to have multiple devices than non-rural consumers. Across the four types of tech studied, it’s smartphones that top the list of penetration in rural areas (at 71%), closely followed by computers (desktop or laptop, with 69% adoption), broadband (at 63%) and tablets

 

Patients, Health Consumers, People, Citizens: Who Are We In America?

“Patients as Consumers” is the theme of the Health Affairs issue for March 2019. Research published in this trustworthy health policy publication covers a wide range of perspectives, including the promise of patients’ engagement with data to drive health outcomes, citizen science and participatory research where patients crowdsource cures, the results of financial incentives in value-based plans to drive health care “shopping” and decision making, and ultimately, whether the concept of patients-as-consumers is useful or even appropriate. Health care consumerism is a central focus in my work, and so it’s no surprise that I’ve consumed every bit of this publication. [In

 

Can AI Make Healthcare Human Again? Dr. Topol Says “Yes”

“The Fourth Industrial Age,” Dr. Abraham Verghese writes, “has great potential to help, but also to harm, to exaggerate the profound gap that already exists between those who have much and those who have less each passing year.” Dr. Verghese asserts this in his forward to Deep Medicine, Dr. Eric Topol’s latest work which explores the promise of artificial intelligence (AI), Big Data, and robotics — three legs of the Fourth Industrial Age stool. [If you don’t know the work of Dr. Verghese, and since you’re reading the Health Populi blog, you must get to know Dr. V now. Your

 

The Balance of Personalization and Privacy For Health/Care – Amazon and Beyond

“Is it possible to take personalization too far for consumers?” asks a paper on Privacy and Personalization from SmarterHQ. The answer is, “it depends.” Consumers are sending mixed messages to marketers about their preferences for being forgotten versus being engaged and recognized. This tension has extreme relevance for personal health and healthcare, as AI and data analytics become quickly adopted by payors, insurance companies, providers, pharma, and consumer tech companies that lie outside of HIPAA privacy and security regulations. SmarterHQ polled over 1,000 consumers and found that: Most consumers are concerned about their data privacy, and believe that companies know too

 

Deep Human Interactions: The Antidote To More AI In Health Care – Learning From Philips’ CEO At HIMSS19

“The promise of AI is undeniable…could AI help clinicians deliver better and more humanistic care?” This question is asked and answered in a JAMA viewpoint published January 1/8 2019 titled, Humanizing Artificial Intelligence. This theme motivated a conversation held over a dinner convened by Philips hosted by Frans Van Houten this week at HIMSS19. To provide context Geoff Colvin, Fortune‘s Senior Editor, first talked about taking friction out of industries, as Lyft and Uber have done in the transport sector. “Taking friction out of industries challenges and changes business models,” Geoff noted. With Uber’s IPO valuation approaching $100 billion, I’d say that’s

 

Calling Out Health Equity on Martin Luther King Day 2019

On this weekend as we appreciate the legacy of Martin Luther King, Jr., I post a photo of him in my hometown of Detroit in 1963, giving a preliminary version of the “I Have a Dream” speech he would deliver two months later in Washington, DC. Wisdom from the speech: “But now more than ever before, America is forced to grapple with this problem, for the shape of the world today does not afford us the luxury of an anemic democracy. The price that this nation must pay for the continued oppression and exploitation of the Negro or any other