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Missing My Friend Tony on World Aids Day

I’ve missed my friend Tony for the past 19 years. He was in the first generation of white gay men who died of AIDS, back in 1997. When Tony was diagnosed within months of this photo being taken, he was with full-blown AIDS. At that time, Tony had no access to the portfolio of drug therapies available to an HIV+ patient today. Those were the days of denial, experimentation, toxicity, and really, really tough side effects. If you want to know what it was like in that era under President Reagan and his politicized regime┬áthat was blind to the public

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Health Politics – Learning From History in Art from the Reagan/AIDS Era

By Jane Sarasohn-Kahn on 24 July 2015 in Art and health, FDA, Health costs, Health politics, HIV/AIDS

The high cost of specialty drugs, opaque information on risks of many existing prescription drugs, and lack of cures for diseases impacting millions of people are forces driving patients into activism, the likes of which we haven’t seen since the emergence of AIDS. I was reminded this yesterday, not inside the Beltway at an FDA or Congressional hearing, or in an online social network of patient activists. I was visiting the newly re-opened and re-built Whitney Museum, an architectural gem now re-energizing the Meatpacking District in Lower Manhattan. It wasn’t the building design (which is getting rave reviews from architecture

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mHealth will join the health ecosystem – prelude to the 2014 Consumer Electronics Show

The rise of digital health at the 2014 Consumer Electronics Show signals the hockey-stick growth of consumer-facing health devices for fitness and, increasingly, more medical applications in the hands of people, patients, and caregivers. This year at #CES2014, while the 40% growth of the CES digital health footprint will get the headlines, the underlying story will go beyond wristbands and step-tracking generating data from an N of 1 to tools that generate data to bolster shared-decision making between people and the health system, and eventually support population health. For example: – Aetna is partnering with J&J to deploy their Care4Today

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World AIDS Day – Remembering Tony M

Because it’s World AIDS Day, I recall an old friend who’s no longer with me especially today, every year since 1987. Meet Tony M, a dear friend who succumbed to AIDS in 1987 in the first generation of white gay men who braved the Ronald Reagan Era of the band playing on when this new disease ravaged a significant slice of a generation of creative, energetic, young people. Here are two pictures of Tony with me and friends: the first, of Tony in between my friend Susan and me, at my wedding; the second, Tony with his friend and my

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